Thursday, December 19, 2013

Transplant/Admission


Dad left for Tri-Cities, Washington on Monday afternoon.  He stayed with his sister, Karen in Richland in preparation for his flight to Phoenix the following morning.  He flew into Seattle and hung out with my brother, Sam until his connecting flight took off for Phoenix.  When I met him at the airport he was exhausted and ready to done traveling.
I got him settled into the hotel about an hour later and he ate ferociously, which was excellent!  His appetite has been sporadic at best for the past few weeks.  I was pleasantly surprised how easily he was able to get comfortable in a hotel bed.  But, he was napping shortly after he ate.
Early Wednesday morning, around 4:00, he fell while trying to get out of bed.  The rest of the morning he was groaning in pain and struggled to sleep peacefully.  Despite giving him pain meds, he was very uncomfortable.  When it came time to get him ready for his appointment, moving him was nearly impossible.  It took us nearly 30 minutes to get him upright and into his clothes for the day.  I became increasingly worried about his arm being broken and anxious to get him into see his new oncologist.
His appointment was at 1:45 on Wednesday afternoon.  By 2:00 we were preparing to relocate to the Mayo Clinic Hospital via ambulance transport with the emergency room first on the list of stops. 
The oncologist said his cancer has turned into an aggressive form of cancer instead of the opposite he’s been fighting for the past year.  The tumors on his clavicle and ribs have grown substantially over the past month.  With the fear of a broken bone being addressed, the fragility of his body was enough to postpone any immediate plans for a bone marrow transplant.
Fast forward to what we know right now.  They pulled a liter of fluid from his right lung.  A LITER.  He has gone through another bone marrow biopsy.  He received a central line (PICC) today.  His pain has been mostly managed, which has been a major battle for the doctors and nurses.  He has had an EKG, MRI, CT, and x-rays. 
The fall he made broke his humorous (the long upper bone in your arm) and may have caused his clavicle to splinter as well.  We’re not sure exactly when the clavicle broke.  His clavicle has significant tumor growth and may have broken from the tumors.
Tomorrow he’ll get a heart echo.  He has tachycardia and the doctors are doing what they can to keep him calm and comfortable.  His blood pressure has been all over the place and they aren’t exactly sure why yet.  Tomorrow we’ll be getting a lot of results from cultures, blood draws, the fluid pulled from his lungs, and the rest of the tests they’ve conducted over the past 24 hours.
There is concern the fluid in his lungs is multiple myeloma.  I’m not freaking out just yet.  I’ll freak out when they tell me it’s time to.  His fever has been managed and he has been more comfortable this evening.  We have left him under the care of the staff tonight so we can get some much needed rest.  I’m hopeful he’s getting good rest and will feel more together tomorrow morning.
He has been very confused over the past few weeks.  The ammonia levels in his blood have spiked to 90 (normal is less than 30).  They are continuing to administer drugs to help bring those levels down.  His kidneys have shown some signs of distress as well.  But, we’re waiting on conclusive results from lab reports.
There are a lot of things hanging in the balance right now.  Things can go several different directions.  We are hoping the next couple of days will bring some health and strength back to him so he’ll be able to go through his new chemotherapy. Right now we are waiting to see how he responds.

If you have any questions about anything above, please don’t hesitate to shoot me an email.  Text messages and phone calls are difficult to answer right away.  But, I’m happy to email back when I’m in a lull.  Today was very busy, but I expect things will be a tad slower tomorrow.  But, tomorrow will be filled with doctor updates and consults.  Oh!  Please keep spreading this around and help us meet some major goals!

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Mom

I miss my mother. It’s nearly constant. The more birthdays I celebrate, the closer I come to the age she was when we were closest. We spoke ...